Life with Down Syndrome

(esquire.com)

66 points | by NaOH 1 day ago

5 comments

  • origini 43 minutes ago
    Its a nice article and a positive one.

    Unfortuna another documentary about people with Down Syndrome were more heartbreaking. A young girl got told from a doctor that not only shouldn't she get to try pregnant, the chance is very low already and that she has other medical concerns she needs to handle.

    Not something she could handle without a proper care taker though.

    • bobthebuilder4 17 minutes ago
      They absolutely shouldn't try to get pregnant, they'll be incapable of looking after the child.
    • geertj 19 minutes ago
      To add a factoid without expressing an opinion: women with Down syndrome are often fertile while men typically are not. The odds of the offspring of a female with trisomy 21 having the same trisomy are 50% theoretically, and between 33-40% in practice due to trisomy embryos having a higher rate of spontaneous miscarriage.
  • avazhi 26 minutes ago
    > But because he has Down syndrome, someone told him he’s different.

    Yes, and him being different is a statement of fact. Stop pretending low IQ is something to be celebrated or ignored.

    • InsideOutSanta 20 minutes ago
      I don't know why people don't understand this, but something being true doesn't mean it can't also be hurtful, and it doesn't mean it has to be said. Gabe clearly already knows that he is different; there's absolutely no point in telling him this, other than to hurt him.
      • n6242 3 minutes ago
        "You're not wrong, Walter, you're just an asshole." (The Big Lebowski)
      • dcss_gardener 14 minutes ago
        Ah but they do understand this. They just like hurting people.
    • thomassmith65 2 minutes ago
      I'll disregard that advice unless he runs for political office, and then only if the incumbent is noticeably smarter.
    • black_knight 16 minutes ago
      We are all different, and have different challenges in life to overcome. That’s life, as they say. You, for instance, have your prejudges to struggle with.

      The question is how we all deal with these challenges, and how we meet people who are different from ourselves. I think it is important that we don’t put each other down, or judge based on our assumptions of what a person’s differences entails. Meeting people as individuals, and imagine other people complexly. And cheering on each other as we each overcome our challenges.

  • abstractspoon 1 day ago
    I'm not Downs but I have a personality disorder such that I've always felt different. I'm 60 now and yet to meet anyone, M or F, who seems remotely like me. I was married, didn't end well, and have a daughter who doesn't talk to me. I live every day bathed in the knowledge that I am utterly alone in the world, despite having 2 close female friends. It has always been this way. It will always be this way. I try to live a quiet secluded life.
    • booty 1 hour ago
      Is it a recognized personality disorder?

      (I'm guessing "no" but a lot of recognized conditions have huge variance in individuals, so having a recognized personality disorder also isn't a guarantee that there will be others with a similar mindset...)

      More importantly, I wish you peace and happiness. It's a difficult hand to be dealt...

      • LoganDark 1 hour ago
        Many individuals also have more than one personality disorder. I have a partner with bipolar + borderline + OCPD and a bunch of other stuff. I have a fair few too (borderline and OCPD at least).

        Based on a hunch, GP may potentially find similar minds on 4chan

    • himata4113 28 minutes ago
      I was lucky enough to know that all I need is presence in my life. I don't really care for interaction or romance.

      Remember that having children, getting married, living a fulfilling life is just the status quo and not the path your life has take. Be or do whatever makes you happy as long as you're not harming others.

      Might be a bit late, but it's all about the ride and leaving something behind for others to enjoy is a nice extra.

    • DiggyJohnson 1 hour ago
      Thanks for sharing. You described the situation well imo, wish you the best
    • Hnrobert42 40 minutes ago
      This sounds very difficult. There are so many people who live with loneliness. It reminds me of the "Tin Man" episode of Star Trek TNG.

      I wish you well and hope you find your Tan Elbrun.

    • tokai 35 minutes ago
      A personality disorder have nothing to do with Downs. One is a genetic disorder and the other is a maladaptive pattern of affect.
      • himata4113 31 minutes ago
        End result is the same though? Cause vs effect.
    • lily_of_the_for 25 minutes ago
      [flagged]
  • RickJWagner 53 minutes ago
    [flagged]
    • weird-eye-issue 49 minutes ago
      Sorry, but is this a joke?
      • sentientlaserbe 40 minutes ago
        No - there are people that see Gabe's life as an opportunity to make culture war comments. This is a feature of our world now.
      • origini 40 minutes ago
        • weird-eye-issue 36 minutes ago
          > a word for a person with a learning disability (= a condition that can have an effect on someone's ability to learn easily), which was used by doctors in the past but is now extremely offensive

          Yes, in that context it's offensive, I agree. But when people use that as a slur with something without a learning disability they aren't literally talking about or referring to a learning disability so it's a different context

  • boxed 30 minutes ago
    > But because he has Down syndrome, someone told him he’s different.

    Down Syndrome is a quite serious genetic abnormality, pretending it's not with silly statements like "someone told him he's different" is absurd.

    • john_strinlai 22 minutes ago
      >Down Syndrome is a quite serious genetic abnormality, pretending it's not

      if you can get past the title, you'll see that this article is not doing that.

    • gchamonlive 22 minutes ago
      It's absurd is being told you are different dismissively and not constructively. It's easy and convenient to dismiss people based on their needs, but true value lies in including everyone meeting them where they are.